JOB SPECIFICATION:

• Post title: Campaigns and Advocacy Manager;


• Location: Remote working, ideally based in Brussels to support EU-Brussels political advocacy. Note that the ability to occasionally travel and work across Europe/the globe (to attend team meetings in the UK and other ad hoc meetings/conferences in Europe) will be required;


• Part time: 3 days per week;


• Contract: This is a permanent role (both freelancers and those seeking employment are welcome to apply);


• Responsible to: Strategy Director for campaigns and general advocacy, and the Director General for political advocacy;


• Deadline for applications: Friday 11 October 2024.

MAIN PURPOSE OF ROLE:

We are looking for a manager with at least 5 years’ relevant experience to lead on our campaigns and advocacy work in close coordination with the Parkinson’s Europe team. A key aspect of this role will be managing our political advocacy activities in EU-Brussels, supported by our Director General.

• General advocacy/campaigning: supporting Parkinson’s Europe’s campaigning and general advocacy work, including the annual World Parkinson’s Day activities, as well as other ongoing initiatives that support our strategic objectives;


• Political advocacy and policy: developing and leading Parkinson’s Europe’s political advocacy engagement plan; supporting our engagement with European bodies including the European Union, European Patient Forum (EPF), European Federation of Neurological Associations (EFNA); and supporting Parkinson’s Europe’s Member Organisations in their national and European-level advocacy work.

KEY TASKS:

• Develop and deliver Parkinson’s Europe’s political advocacy strategy, with guidance from the Director General and our Advocacy and Campaigns working group;


• Manage Parkinson’s Europe’s Advocacy and Campaigns working group and Advocacy Industry Forum. This includes organising meeting logistics, planning agendas and leading the meetings;


• Mapping and engaging with EU officials (Commission, Parliament and Member State representatives) to increase the visibility of Parkinson’s with EU-level decision makers;


• Leading the development of a Parkinson’s Special Interest Group in Brussels;


• Regular monitoring of political activity and intelligence directly related to the key dossiers;


• Help build, maintain and strengthen Parkinson’s Europe’s relationships with external stakeholders that are relevant to our strategic plans – in particular to foster active relationships with several important organisations including the European Federation of Neurological Associations (EFNA) and the European Brain Council (EPF);


• Review and prepare responses to consultations relating to patient advocacy and political campaigning;


• Draft briefings, position papers and official statements relating to Parkinson’s Europe’s advocacy efforts;


• Assist Parkinson’s Europe’s engagement and communications with the EU, national governments, multilateral bodies and civil society partners;


• Work with Parkinson’s Europe’s Communications Manager to translate and align our policy and advocacy work to our communication portfolio, through the development of social media posts, e-shots, podcasts, emails or other relevant communication mediums;


• Assist in the development of toolkits, press releases, political advocacy web pages and other resources where relevant;


• In addition to the Advocacy and Campaign working group meetings, support other political advocacy face-to-face and virtual meetings;


• Lead Parkinson’s Europe political advocacy campaigns (for example, our glyphosate campaign) and general advocacy campaigns (such as World Parkinson’s Day);


• Support the development of a pool of Parkinson’s Europe campaign and advocacy volunteers;


• Provide quarterly campaign/general advocacy/political advocacy reports/updates to the Parkinson’s Europe Board and Member Organisations.

PERSON SPECIFICATION:

• Patient advocacy experience and with an interest in the issues that impact people affected by Parkinson’s;


• EU-Brussels political advocacy and lobbying experience;


• Experience in running online awareness campaigns;


• Project management experience;


• Excellent communication and engagement skills – you will be able to build and maintain effective relationships with a wide range of stakeholders including decision makers, treatment industry partners, healthcare professionals, patient groups, patients, carers and their families, and volunteers;


• Confident public speaker;


• Team player who is also self motivated, and able to work autonomously with minimal supervision;


• Highly proficient in the English language and an additional European language desirable;


• Excellent digital/IT skills with a strong attention to detail.

APPLICATION PROCEDURE:

Please mention in the subject line "Campaigns and Advocacy Manager – First and last name", attach your CV and a cover letter, and email to  adrien@parkinsonseurope.org.

Applications close on Friday 11 October 2024.